What to Know About Moving on From a Pediatric CF Center
Beginning the transition
[What] I think is really important for any parent out there…is teaching your children young to give them the life skills they need as adults to manage this illness.”
–Jen, caregiver of a young adult with CF
Building relationships with your new team
Like any new relationship, it can take time to become comfortable with the team of professionals at your new adult CF center. It’s okay to take some time to feel it out, and open up as you get more comfortable. But it’s also important to be honest when it comes to things that could affect your health, like how you’re doing with your treatments, your diet and exercise routines, and any new or worsening symptoms you might be having.
Questions to ask your
new CF center
Questions to ask your new
- What specialists and services are available at this center?
- What plan does this center have in place for getting new patients
- Will I be able to contact an on-call healthcare provider when the center is closed?
- Does this center offer telehealth services when in-person appointments
- How can I access my electronic records to review appointment notes?
- Will I be able to see a
healthcare provider if I’m sick, but do not require a hospital visit?
- How often will I need to visit the CF center?
- Does this center arrange for transportation?