Perspectives From The Cystic Fibrosis (CF) Community 

Everyone’s experience with cystic fibrosis (CF) is unique. Listen along as individuals in the community share their diverse perspectives on how CF impacts day-to-day life, and get useful information to help empower you in your own journey.


Reflecting on Past Conversations

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Reminisce with highlights from previous podcast episodes and get some hints about future episode topics with host Julia Rae.

Get more nuggets of wisdom from previous podcast guests in this stress management article and in this financial planning article.

Making Your Career Work for You

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Finding a career you enjoy can be so fulfilling. John and Julia discuss how they’ve each cultivated a work-life balance that fits their lifestyle and Human Resources expert, Susan, gives examples of workplace accommodations and job search tips.

Get more information on Workplace Accommodations and discover other workplace considerations.

Facing Finances

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Caregiver, Magen, gets real about the financial challenges she has faced as a parent of twins with CF and social worker, Amanda, gives advice about making difficult life decisions and finding financial assistance.

Find more finance tips and check out our letter template to request insurance coverage.

Building Body Awareness

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Belle talks through her relationship with her body and how her experience as a student athlete has affected that relationship. Dietitian, Molly, provides a few methods for listening to your body and making sure it’s getting the nutrition it needs.

Get more tips from Molly in the Dishing on Fats and Nutrition video and explore the Body section of the site to expand your knowledge.

Coming of Age Stories

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Tara moved across an ocean for love. Hear how she found support in her community and built a life she never imagined possible.

Feeling inspired? Read up on relationship tips.

Beyond the Episode

Caregiver Experiences

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Jen and her son, Michael, discuss some of the challenges they were able to overcome, the incredible accomplishments they’ve achieved, and how they’ve made the most of every moment.

Navigate milestones with your loved one.

Beyond the Episode

Staying on Track & Making Time for Hobbies

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College student, Grace, shares her experience pursuing a degree during the pandemic and how that has shaped her daily routine.

Looking for ways to stay on track yourself? Check out our Staying on Track Journal and our College Transition Guide.

Beyond the Episode

Meet the Host

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Julia Rae is an actor, singer, model, writer, and advocate for the cystic fibrosis community. Living with CF herself, she has always made a point of empowering and uplifting people who have chronic conditions, and even founded her own non-profit at the age of 16 to help fund music therapy programs for children facing challenges.

Along with hosting the Uncommon Lungs podcast, Julia Rae has made multiple TV and movie appearances. She now splits her time between her hometown, Philadelphia, New York City, and Los Angeles. 


Be sure to check out her original music and follow her on Facebook, Twitter, Instagram, and YouTube.