Perspectives From The Cystic Fibrosis (CF) Community
Everyone’s experience with cystic fibrosis (CF) is unique. Listen along as individuals in the community share their diverse perspectives on how CF impacts day-to-day life, and get useful information to help empower you in your own journey.
Episodes (6)
Episode 1: Staying on Track & Making Time for Hobbies
College student, Grace, shares her experience pursuing a degree during the pandemic and how that has shaped her daily routine.
Looking for ways to stay on track yourself? Check out our Staying on Track Journal and our College Transition Guide.
Episode 2: Caregiver Experiences
Jen and her son, Michael, discuss some of the challenges they were able to overcome, the incredible accomplishments they’ve achieved, and how they’ve made the most of every moment.
Navigate milestones with your loved one.
Episode 3: Coming of Age Stories
Tara moved across an ocean for love. Hear how she found support in her community and built a life she never imagined possible.
Feeling inspired? Read up on relationship tips.
Episode 4: Building Body Awareness
Belle talks through her relationship with her body and how her experience as a student athlete has affected that relationship. Dietitian, Molly, provides a few methods for listening to your body and making sure it’s getting the nutrition it needs.
Get more tips from Molly in the Dishing on Fats and Nutrition video and explore the Body section of the site to expand your knowledge.
Episode 5: Facing Finances
Caregiver, Magen, gets real about the financial challenges she has faced as a parent of twins with CF and social worker, Amanda, gives advice about making difficult life decisions and finding financial assistance.
Find more finance tips and check out our letter template to request insurance coverage.
Episode 6: Making Your Career Work For You
Finding a career you enjoy can be so fulfilling. John and Julia discuss how they’ve each cultivated a work-life balance that fits their lifestyle and Human Resources expert, Susan, gives examples of workplace accommodations and job search tips.
Get more information on Workplace Accommodations and discover other workplace considerations.
Meet the Host
Julia Rae is an actor, singer, model, writer, and advocate for the cystic fibrosis community. Living with CF herself, she has always made a point of empowering and uplifting people who have chronic conditions, and even founded her own non-profit at the age of 16 to help fund music therapy programs for children facing challenges.